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Support. Care. Knowledge.

Support

We provide personal and family consultations, workshops and information sessions, group support sessions, and specialized exercise classes.

Care

Our professional staff offer a wide variety of services to clients at all stages of the lifecycle, from children to seniors, and their loved ones.

Knowledge

We welcome calls for information and assistance - connecting with schools, workplaces and the community.

Purple Month

March is Epilepsy Awareness Month and each year HeadWay Victoria supports a month-long series of events that raise awareness of epilepsy and much-needed funds to provide services and support Vancouver Islanders affected by epilepsy. This year we are hoping to raise $1200 to support epilepsy services on Vancouver Island. Visit our campaign page on the Canada Helps website

PURPLE DAY :  MARCH 26th

Purple Day was founded by Cassidy Megan, a young girl who through her own experiences with epilepsy, felt it was important to get people talking about this disease. Since its inception in 2008, Purple Day has grown to be an international event and in Canada it has evolved into a month long campaign taking place every March. Working to promote awareness, while reaching out to those who are living with epilepsy, Purple Month has become a movement that encourages inclusive communities.

List of Purple Month Events:

March 26th Epilepsy Awareness Facebook Fundraising Blitz! This purple month we are trying to raise $1200 to support our epilepsy services and are hoping you will join us! On March 26, 2019 we want you to help raise awareness for epilepsy, all while supporting HeadWay's epilepsy services. If you have a Facebook account please:
1. Create a post to share with all your FB friends sharing something about epilepsy. It could be a safety tip, a personal experience, a triumph in your journey with epilepsy, or maybe even helping to expel a myth, or perhaps some inspiring words. You can also invite your family and friends to join in.
2. Facebook has a new function that was released to Canadians in November where you can add a donate button. Once you have written your Facebook post you can select 'add a donate button' and type ‘Victoria Epilepsy and Parkinson's Centre Society’ and Facebook takes care of the rest, its that simple! You can choose the amount you would like to raise and like we always say - every dollar helps!

March 26th Purple Day at the BC Legislature! Join us at the BC Legislature to be officially recognized by MLA Anne Kang. We will be meeting at the flagpole at 9am, and will be seated in the galleries before the house sits at 10am.  Wear purple and help show our politicians that epilepsy affects entire communities! Email Deirdre to let her know you can make it

March 27-29th HeadWay is at the BCANDS (British Columbia Aboriginal Network on Disability Society) 2019 “From The Outside Looking In” Gathering.  If you are attending this event, come by out booth to say “hi”!

March 27 Free Community Workshop: Understanding Epilepsy click here to register.

Country Grocer is assisting us with Purple Month by having a fundraiser at all 7 of their Vancouver Island stores.  They will provide $2 to HeadWay for every special bouquet of flowers or tin of Waterbridge Occasions English Chocolate and Toffee sold.  Country Grocer is an amazing community supporter.  Thank you so much for all you do to support us and other non-profits in our community!


Follow our social media campaign “A Life with Epilepsy”. If you’d like be part of this campaign, let Deirdre know.  It involves answering a few questions.  Pictures can be taken to protect a participant’s identity if that is preferred.  Names will not be used.

A Life with Epilepsy: Part 1

"For the most part, I’ve had a happy and healthy life; although epilepsy has lessened my social opportunities and employment opportunities. I am determined not to let epilepsy take over my life and I try to look at the positives and make the best of the situation. I have been working very hard to increase my skills and I am planning to start my Masters degree in special education this year. I think that the most positive outcome of having epilepsy is meeting people that I wouldn’t have met if I didn’t have epilepsy. It has also allowed me experiences that I may not have had, such as public speaking and involvement on various advocacy committees.

The people in my life have helped me to overcome many of the obstacles that epilepsy presents. I have great parents and wonderful friends who have always been there for me through the ups and downs associated with having epilepsy. I also really appreciate the community of people that surround me in my involvement in places like HeadWay Victoria. Another organization that has really made a difference in my life is my karate club. With my seizures, I never thought I would be able to do karate, but I am proud to say that I have been involved in karate for five years now and so far I have achieved a blue belt! I love karate so much. I hate to miss classes so I just work through my seizures and take some ativan if I need to. My sensei is very understanding, and he has adapted karate to fit my unique needs. If I am having a bad seizure, sensei may ask others not to vocalize the way we normally do because sometimes loud noises bring on my seizures. Usually I just wait for my seizure to pass and then I can get back to class!

My biggest worry is not being able to work. I want to provide for myself and have a purpose in life. I love volunteering and the part-time jobs I have had, but I am hoping to do more. My dream job would be to work from home and travel while I teach online or write course materials. I would also be interested in becoming a disability consultant or working in the tech industry with robots that assist people with disabilities.

Living with epilepsy is a challenge, but I think it has helped to make me who I am today. I hope that by sharing my experiences I can help others find some peace with epilepsy in their lives. I think it is true that with adversity comes strength."

A Life With Epilepsy: Part 2

"My daughter’s first seizure happened when she was one and a half. She was put on medication and we were lucky enough to have almost a year seizure-free. Epilepsy didn’t mean much to me at that time; it was even easy to forget she had it - until almost a year ago, (I can’t believe it’s been nearly a year) she started having seizures again. This year has been hard. With every medication change comes new hope, and just when we think we might be in the clear for awhile, she has another one. Sept 23 and Dec 15 are two days I’ll always remember; those are the days that she stopped breathing. I thought I was watching her die. It’s hard to forget. It would be easy to let fear take control. I’d love to keep her in a safe little bubble forever, but I don’t think she would be very happy in that safe little bubble. I just want her to be happy - so I will parent with an open mind, even if it makes me scared. And I will continue to educate myself so we can make the best decisions for her treatment. When I read about all the advances in epilepsy, it makes me hopeful. We have a long journey ahead, but we’ll be okay. My daughter has epilepsy, but it doesn’t have her."

 

A Life with Epilepsy: Part 3

"Having epilepsy has made me more resilient and strong-willed.
Epilepsy really put a halt on my education. I developed epilepsy at the age of 15, and was told by Neurologists in Regina to stop my schooling until I could get the seizures under control. My recent long term memory would get erased after each seizure, and I’d have to start learning my school work from the beginning again.
Since moving to BC, my seizures are under control now and I have just started classes at Camosun College. With a grade 9 education, they convinced me to enrol in college-level classes after I scored well on the assessments. I just got my first results and I’ve scored 100% on all assignments in one class, and a 51/53 (96%) on an exam in the other!
Now that I am back at school, I’m afraid my memory will hinder my progress. I work hard to make sure I remember everything. I have patience and discipline though, so I know I will do it! I’m really excited to learn memory techniques that are taught in my psychology classes!
If it wasn’t for epilepsy, I wouldn’t have had the opportunity to travel to see UFC events. I’ve travelled all over the world. When doctors told me to stop going to school, I got really involved in attending UFC events as a way to take a hiatus from the restrictive life I was living. There is so much more to life!
Being confined and restricted got depressing for me. Traveling was so good for my mind and my belief in myself. Never stop dreaming! Never give up on yourself!
I’ve been so fortunate to have met other people through HeadWay Victoria who have lived their entire lives with epilepsy and have fulfilled their dreams – going to school, having a family, working full-time and even performing on stage! If they can do it, so can I!
For anyone struggling with epilepsy: Some of the greatest things in life come from some of the most difficult situations. It’s not what happens to us that defines us. It’s what we do – how we react – that defines who we are!"

A Life With Epilepsy: Part 4

"When I started having seizures I had to give up riding bikes and because of that I tried sports I wouldn’t have tried otherwise like baseball, soccer, pool, basketball, volleyball and snowboarding.

Not being able to participate in my favourite sport BMX racing was a really hard adjustment but I overcame it by having hope that I could get my seizures under control and ride bikes in the future.

Once my seizures were under control, I was able to travel to Disneyland with my family and have a fun seizure-free trip. I have also had many awesome snowboarding trips.

I am scared of having a seizure again though, so I am taking my medication and going to bed on time to make sure I don’t.

I now have this life where I have too many happy moments to list and good friends that know me and accept me."

 


What can you do to participate?

If you have school age children, talk with them and their teachers about creating an epilepsy awareness display in their classrooms. Purple is the official colour, so a classroom can be decorated in everything Purple. Pick a day in March and organize the students to come to school wearing purple.  Or you can create a fund raising event such as a bake sale, Yummy cupcakes with purple icing!

For businesses, decorate your storefront windows or reception areas in purple or organize a fund raiser. Remember HeadWay has epilepsy awareness posters, so give us a call to make arrangements to pick them up. As well as our poster package, HeadWay also has purple bracelets, purple pencils and seizure first aid cards to give away to participating schools and businesses to help build their displays.

Be sure to take a photo of your display and send it to us so we can share it on our social media.

Download this Poster and put in your window to show support and raise awareness for Epilepsy Awareness Month. Thank You!